Sunday, March 15, 2009
Happy Birthday Daddy!
Today is Brad's birthday and Cole is cooperating by giving his dad the gift of stability. He had another stable night last night. They had to give him another blood tranfusion, but it seemed to help because his stats were really good afterwards. He was starting to come out of the sedation right as we were leaving, so we stayed a little longer than normal this afternoon waiting for him to calm back down before we left. When he starts to wiggle, the nurse said she puts her hands on his arms and legs and applies a little pressure. Just enough to make him feel like he is being held. Since I was there when she did this I got to help her. One of the requirements of the minimal stimulation is that we cannot touch him. So being able to touch him this morning was a wonderful surprise and a blessing! Even though we know it isn't good for him to be moving around, it is kind of nice to see every now and then just to remind us that he is a healthy baby other than his lungs. Keep praying for stability. At some point this week, they hope that one of his stats (the oxygen level they check in his blood gas) will start to consistently be in the 300's. Once they see some consistency then they will be able to start backing down his oxygen level from 100%. That is when we will know that he is starting to get better. We have been praying and are hopful for that day! Thank you for the continued prayers and support. Our little guy is a fighter!
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I'm so happy to hear that! We are praying for you all and will continue to do so! If you haven't already, check out this blog http://www.kellyskornerblog.com/
ReplyDeleteI'm not sure exactly what was wrong with their little girl, but about 8 weeks ago, she was born and it seems like she was having the same types of issues. They were often talking about her saturations and oxygen levels and the like. Anyway, thought it might give you some peace!
The Days
Hey -
ReplyDeleteHarper did not have pulmonary hypertension but it was similar. She was born with pneumonia. They flew her to a hospital to have ECMO. We ended up not having to have it but she was on an oscillator at 100% oxygen for 7 days and on the 7th day - she turned a corner and they started backing off her oxygen. We were in the NICU for 20 days. It was very scary. They told us the night she was born that she would likely not live and for that first week they would just say "she is very, very critical".
But she is 2 months today and is perfect and healthy and you would never know she had been sick.
They had her in a medical coma for the first 10 days of her life. We couldn't really touch her and we could only whisper at first. But the first day we saw her eyes open and when we held her at 12 days - greatest days ever!!!
I know it is hard .......but take every little step forward as a miracle. I would cry every time her stats got a little better or she had a good blood gas. Any encouragment helped us so much. I will be praying for Cole.
Feel free to e-mail me if you want to talk.
mrskellystamps@yahoo.com
P.S. We have friends who had a little boy 3 days before Harper and he did have pulmonary hypertension and they flew him to a different children's hospital and almost had to have ECMO also and he ended up staying 4 weeks (he was a little smaller than Harper) but he is home and fine also. Her blog is www.jennasjourneyblog.blogspot.com if you want to visit her also!
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